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Organizations
You are here : Home > Conditions and Diseases > Genetic Disorders > Cystic Fibrosis > Organizations
Cystic Fibrosis Worldwide
International Association of Cystic Fibrosis Adults web site and International Cystic Fibrosis Mucoviscidosis Association.
http://www.iacfa.org/
Elizabeth Nash Foundation
Supports causes reflective of Elizabeth Nash's interests and values with a specific emphasis on efforts that improve the lives of those affected by Cystic Fibrosis.
http://elizabethnashfoundation.org
European Cystic Fibrosis Society
ECFS, aims to achieve the best possible treatment and the highest quality of life for the patient with cystic fibrosis by the development and distribution of knowledge in the field of cystic fibrosis
http://www.ecfsoc.org/
European Cystic Fibrosis Thematic Network
Creates a platform for scientists involved in fundamental CF research, for the more than 160 genetic diagnostic laboratories, for CF associations of families, patients and clinicians, legal experts and representatives of the industry.
http://www.cfnetwork.be/
I.C.F.M.A.
A not-for-profit organization for increasing cystic fibrosis awareness.
http://www.icfma.org/
Lungs for Life Foundation
Provides financial assistance to cystic fibrosis and lung transplant patients.
http://Lungsforlife.org/
Milan Foundation
Created in the name of Milan Brown who, at the age of 3 1/2, was diagnosed with Cystic Fibrosis. Includes a calendar, stories and poems about CF, how to donate, and the foundation's mission.
http://www.milanfoundation.org
National Cystic Fibrosis Awareness Committee (NCFAC)
Helps to advance the public awareness of the genetic disease. Site includes mission statement and message board.
http://www.cfawareness.org/
New Jersey State Organization of Cystic Fibrosis
NJSOCF provides direct, hands on financial assistance to CF patients throughout the state, counseling, referrals and educational materials to patients and their families. Includes a Q&A's, news, services offered and coming events.
http://www.njsocf.org
Reaching Out Foundation
Provides information on the programs provided by this foundation, a personal story of a person with CF who had a double lung transplant, general information on CF, and how you can donate.
http://www.reachingoutfoundation.org/
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