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Epidermolysis Bullosa
Home > Conditions and Diseases > Genetic Disorders > Epidermolysis Bullosa
Cristina's Castle in the Clouds
Information and support for those interested in a skin disorder called epidermolysis bullosa. Message board and also a list of camps for children with this disorder.
http://www.homestead.com/cristinascastle/index.html

DebRA Australia, Queensland Branch
Features disorder information, organization background, publications, photo gallery, and information about the NSW branch.
http://www.debraqld.org

DebRA Canada
Includes articles, news, and information about this genetic disorder.
http://www.debracanada.org/

DebRA International
Dystrophic Epidermolysis Bullosa Research Association. A voluntary, non-profit organization dedicated to creating awareness and providing support for families affected by Epidermolysis Bullosa (EB). Includes treatment and care information, latest research, organization history, and forums.
http://www.debra-international.org/

DebRA of America
Offers information, news, newsletters, support, and resources.
http://www.debra.org/

DebRA UK
Features organization background, information about the disorder, fundraising and research details, and news.
http://www.debra.org.uk/

EB Info World
Information, mailing list, pictures, and help for new parents.
http://www.ebinfoworld.com

EB Medical Research Foundation
A volunteer, nonprofit foundation dedicated to the support of medical research about this disorder. Includes information about research, videos, and organization information.
http://www.ebkids.org/

International EB Forum
Includes downloadable articles and booklets as well as links of interest. Also offers password-protected forums for professionals.
http://www.internationalebforum.org/

 
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