|Cristina's Castle in the Clouds|
Information and support for those interested in a skin disorder called epidermolysis bullosa. Message board and also a list of camps for children with this disorder.
|DebRA Australia, Queensland Branch|
Features disorder information, organization background, publications, photo gallery, and information about the NSW branch.
Includes articles, news, and information about this genetic disorder.
Dystrophic Epidermolysis Bullosa Research Association. A voluntary, non-profit organization dedicated to creating awareness and providing support for families affected by Epidermolysis Bullosa (EB). Includes treatment and care information, latest research, organization history, and forums.
|DebRA of America|
Offers information, news, newsletters, support, and resources.
Features organization background, information about the disorder, fundraising and research details, and news.
|EB Info World|
Information, mailing list, pictures, and help for new parents.
|EB Medical Research Foundation|
A volunteer, nonprofit foundation dedicated to the support of medical research about this disorder. Includes information about research, videos, and organization information.
|International EB Forum|
Includes downloadable articles and booklets as well as links of interest. Also offers password-protected forums for professionals.