Prader-Willi Syndrome
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Gretton Homes
Information about the organization that offers residential care for people with Prader-Willi Syndrome.
http://www.gretton-homes.co.uk/
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Prader-Willi Alliance of New York
Represents the interests of individuals in New York State with Prader-Willi syndrome, their families, and the professionals who provide services to the Prader-Willi population.
http://www.prader-willi.org
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Prader-Willi Syndrome Association (USA)
Characteristics include hypotonia, insatiable appetite, obesity if food intake is uncontrolled, hypogonadism and incomplete sexual development, developmental delays, variable degrees of mental retardation or functional retardation, short stature (adult), small hands and feet, mild dysmorphology, and behavior problems which can be severe.
http://www.pwsausa.org/
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PWS Notes
Designed to provide useful background on Prader-Willi Syndrome (PWS) for parents and to organize medical information that may be helpful for future research directions.
http://www.pwsnotes.org/
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