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Shwachman Syndrome
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Katie's Journey
Katie has Shwachman-Diamond Syndrome and needs a bone barrow transplant. Find disease information and links to support organizations.
http://www.katiesjourney.50megs.com
Shwachman-Diamond America
Profiles SDA, a nonprofit that educates doctors and families about shwachman-diamond syndrome and also supports research.
http://shwachmandiamondamerica.org
Shwachman-Diamond Syndrome International
Support organization helping the victims of this disease. Provides a network for families to receive information, advocacy, and emotional support, and keep abreast of the most current medical information available.
http://www.shwachman-diamond.org/
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