A non-profit support group for the families and medical care providers of children and adults born with Congenital Diaphragmatic Hernia.
|Human Growth Foundation|
Information about growth-related disorders through education, research, and advocacy. Member driven organization.
|Information Centre for Rare Diseases and Orphan Drugs|
Offers an Internet portal. Includes news, forums, rare disease and orphan drug info and registration forms
|National Organization for Rare Disorders, Inc.|
Information about NORD, its programs, special events and the variety of services offered. Includes a rare disease, organization and orphan drug database. Diseases are listed alphabetically for easy searching.
Information on structure, biosynthesis and pathophysiology of BH4 and tetrahydrobiopterin deficiency.